Houston or bust

September 16, 2013 in Lymphoma by adminrcr

We made it, with a little time to spare. This place, the whole campus, is absolutely HUGE!! Good thing I watched the directions video on MD Anderson’s website 🙂  In addition to MD Anderson, there is Texas Women’s University, St. Luke’s Hospital, Texas Children’s Hospital, Shriner’s Hospital for Children, a bunch of Baylor buildings, and the list goes on and on. I think it would be wise for us to take advantage of the complimentary shuttle from the hotel – I don’t dare try to figure out the parking.

Our schedule changed just a little bit. Jeff is scheduled for an EKG and chest x-ray on Wednesday, bone marrow biopsy (thankfully under sedation) and CT scan on Thursday, and another appointment with Dr. Hagemeister on Friday. (We get to go play at the beach tomorrow.) All this is to evaluate him for a clinical trial – MLN8237 Plus Romidepsin. Dr. Oommen believes there should be no reason he wouldn’t qualify for the trial, unless maybe Jeff has had a chemo drug which would exclude him. So, that’s the plan so far for the week.  We’ll see what Dr. Hagemeister says on Friday to see what happens next.

We checked in at home this evening and all is well. Grandma takes good care of those spoiled kids! We have also threatened the kids that they better be on their best behavior and help Grandma, or ELSE.

Oh, when I was online last night, I found out that September 15th is World Lymphoma Awareness Day http://en.wikipedia.org/wiki/World_Lymphoma_Awareness_Day. Read up and Know Your Nodes 🙂

Thank you all for the prayers and good wishes you’re sending. Back atcha! We feel so fortunate to have the incredible support system we have. Our friends, neighbors, family, doctors, bosses are invaluable.